Supporting Vulnerable Children after Life-Threatening Neonatal Illness: Opportunities for Improving Outcomes
نویسندگان
چکیده
منابع مشابه
Imparting the diagnosis of life threatening illness in children.
The parents of children with life threatening or terminal illnesses were interviewed about their experiences of the way in which they were told the diagnosis. The interview was piloted on 25 families and then administered in a semistandardised manner to a further 45 families. Parents were asked how satisfied they were with the initial discussion about the diagnosis: 23 families were satisfied w...
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A retrospective study was undertaken of 25 families and their 26 ill children attending the first children's hospice in the United Kingdom. The study examined the family's perceptions of the care offered and the impact of chronic and life threatening illness. Eighteen (72%) of the families felt they had been well supported by the hospice and valued the family like atmosphere, perceiving the sta...
متن کاملPediatric hospital care for children with life-threatening illness and the role of palliative care.
Under increasing pressure to contain costs, hospitals are challenged to provide high-quality care to an increasingly complex group of children with life-threatening illness (LTI) that often worsen over time. Pediatric palliative care is an essential component of optimal hospital care delivery for these children and their families. This article describes (1) the current landscape of pediatric ho...
متن کاملSpirituality and life-threatening illness: a phenomenologic study.
PURPOSE/OBJECTIVES To examine the lived experience of individuals when confronted with a life-threatening disease. RESEARCH APPROACH Qualitative, phenomenologic using Giorgi's approach. SETTING Patients' homes in the Midwest. PARTICIPANTS Five women and two men, aged 44-74 years, who had a variety of diagnoses, including breast cancer, colorectal cancer, prostate cancer, pulmonary fibrosi...
متن کاملSupportive medical care in life-threatening illness: A pilot study.
OBJECTIVE The goal of this pilot study was to identify the processes by which healing occurs in patients who experience a life-threatening illness. METHOD Healing was examined by using two qualitative studies that employed a semistructured interview process (interviews lasted between 30 and 115 minutes). There were 10 cardiac event survivors and 9 cancer survivors. These participants came fro...
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ژورنال
عنوان ژورنال: The Journal of Pediatrics
سال: 2016
ISSN: 0022-3476
DOI: 10.1016/j.jpeds.2016.07.037